A secure data publishing and access service for sensitive data from Living Labs: enabling collaboration with external researchers via shareable data

Abstract

Intending to enable a broader collaboration with the scientific community while maintaining privacy of the data stored and generated in Living Labs, this paper presents the Shareable Data Publishing and Access Service for Living Labs, implemented within the framework of the H2020 VITALISE project. Building upon previous work, significant enhancements and improvements are presented in the architecture enabling Living Labs to securely publish collected data in an internal and isolated node for external use. External researchers can access a portal to discover and download shareable data versions (anonymised or synthetic data) derived from the data stored across different Living Labs that they can use to develop, test, and debug their processing scripts locally, adhering to legal and ethical data handling practices. Subsequently, they may request remote execution of the same algorithms against the real internal data in Living Lab nodes, comparing the outcomes with those obtained using shareable data. The paper details the architecture, data flows, technical details and validation of the service with real-world usage examples, demonstrating its efficacy in promoting data-driven research in digital health while preserving privacy. The presented service can be used as an intermediary between Living Labs and external researchers for secure data exchange and to accelerate research on data analytics paradigms in digital health, ensuring compliance with data protection laws.