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Shifting to a model of donor conception that entails a communication agreement among the parents, donor, and offspring
(BMC, 2022-03)
[EN] BACKGROUND: Some persons conceived with donor gametes react negatively when they found their birth via donor conception. They request access to information about and seek to communicate with the donor. However, some ...
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
(Springer, 2018-04)
Despite the increasing availability of direct-to-c onsumer (DTC)genetic testing, it is currently unclear how such services are regulated in Europe, due to the lack of EU or national legislation specifically addressing this ...
Medio siglo de cribado neonatal en España: evolución de los aspectos éticos, legales y sociales (AELS). Parte II, marco legal
(Ministerio de Sanidad Y Consumo, 2021-01-26)
El cribado neonatal es una actuación sanitaria regulada
específicamente en nuestra legislación. El ordenamiento
jurídico establece que el cribado sanitario es una actuación de salud pública, enfocada a la prevención de ...
Medio siglo de cribado neonatal en España. Evolución de los aspectos éticos, legales y sociales (AELS). Parte I, aspectos éticos
(Ministerio de Sanidad y Consumo, 2021-01-26)
El cribado neonatal de enfermedades endocrino-metabólicas
tratables se inició en España el 1968, y durante el medio siglo que
ha transcurrido desde entonces hemos vivido importantes cambios, políticos, sociales y ...
Germline Gene Editing: The Gender Issues
(Cambridge University Press, 2023-04)
Human germline gene editing constitutes an extremely promising technology; at the same time, however, it raises remarkable ethical, legal, and social issues. Although many of these issues have been largely explored by the ...
Bridging the European Data Sharing Divide in Genomic Science
(JMIR, 2022-10)
In this viewpoint, we argue for the importance of creating data spaces for genomic research that are detached from contexts in which fundamental rights concerns related to surveillance measures override a purpose-specific ...
Your genetic data is my genetic data: Unveiling another enforcement issue of the GDPR
(Elsevier, 2022-11)
The General Data Protection Regulation aims to protect data subjects by granting them control over their data. The shared nature of genetic data causes significant challenges in this framework by posing the question of ...
Algunas consideraciones bioéticas y jurídicas acerca de la Declaración de Ginebra sobre edición del genoma humano hereditario a la vista de las Declaraciones Internacionales
(Universitat de Valencia, 2021-06-24)
[ES] La reciente Declaración de Ginebra sobre edición del genoma humano denuncia la posición central que han ocupado tanto la Ciencia como la Bioética hasta la fecha, afirmando que ambas mantienen una posición decididamente ...
Why whole body gestational donation must be rejected: a response to Smajdor
(Springer, 2023-07)
Anna Smajdor’s proposal of whole body gestational donation (WBGD) states that female patients diagnosed as brain-dead should be considered for use as gestational donors. In this response, Smajdor’s proposal is rejected on ...
Re-defining the human embryo: A legal perspective on the creation of embryos in research
(Nature Publishing Group UK, 2024-01-02)
The notion of the human embryo is not immutable. Various scientific and technological breakthroughs in reproductive biology have compelled us to revisit the definition of the human embryo during the past 2 decades. Somatic ...