Search
Now showing items 11-20 of 24
‘Digital pills’ for mental diseases: an ethical and social analysis of the issues behind the concept
(Oxford University Press, 2020-07-27)
Recently, the US Food and Drug Administration has given a landmark approval to the very first digital pill with a sensor embedded in the inside. These are complex systems that include a drug and an electronic tracker that ...
We should not vaccinate the young to protect the old: a response to Giubilini, Savulescu, and Wilkinson.
(Oxford University Press, 2021-05-19)
A recent article by Giubilini, Savulescu, and Wilkinson1 exposes an ethical issue that deserves careful analysis: should we vaccinate children to save the old? The answer provided by the authors is ‘yes’ under the condition ...
Gene editing and disabled people: a response to Felicity Boardman
(Springer-Verlag GmbH Germany, part of Springer Nature, 2020-03-27)
Is the germline gene editing (GEE) of embryos with disabling conditions a moral obligation? According to a recent editorial by F. Broadmann, there are strong reasons to hold the opposite, since “ such a focus on the benefit ...
What Can We Do with the Data of Deceased People? A Normative Proposal
(Kluwer Law International, 2021-10)
The health and genetic data of deceased people are a particularly important
asset in the field of biomedical research. However, in practice, using them is complicated,
as the legal framework that should regulate their ...
Health Information Counselors Help Avoid Automatized Decisions in Health Care
(Wolters Kluwer, 2019-05)
Shifting to a model of donor conception that entails a communication agreement among the parents, donor, and offspring
(BMC, 2022-03)
[EN] BACKGROUND: Some persons conceived with donor gametes react negatively when they found their birth via donor conception. They request access to information about and seek to communicate with the donor. However, some ...
Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
(Springer, 2018-04)
Despite the increasing availability of direct-to-c onsumer (DTC)genetic testing, it is currently unclear how such services are regulated in Europe, due to the lack of EU or national legislation specifically addressing this ...
Germline Gene Editing: The Gender Issues
(Cambridge University Press, 2023-04)
Human germline gene editing constitutes an extremely promising technology; at the same time, however, it raises remarkable ethical, legal, and social issues. Although many of these issues have been largely explored by the ...
Bridging the European Data Sharing Divide in Genomic Science
(JMIR, 2022-10)
In this viewpoint, we argue for the importance of creating data spaces for genomic research that are detached from contexts in which fundamental rights concerns related to surveillance measures override a purpose-specific ...