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dc.contributor.authorMinor, Brittany C.
dc.contributor.authorDashner, Jessica
dc.contributor.authorEspín Tello, Sandra Martina
dc.contributor.authorBollinger, Rebecca
dc.contributor.authorKeglovits, Marian
dc.contributor.authorStowe, James
dc.contributor.authorCampbell, Margaret
dc.contributor.authorStark, Susan L.
dc.date.accessioned2021-05-31T08:37:05Z
dc.date.available2021-05-31T08:37:05Z
dc.date.issued2020-05-18
dc.identifier.citationJournal Of Clinical And Translational Science 4(6) : 508-514 (2020)es_ES
dc.identifier.issn2059-8661
dc.identifier.urihttp://hdl.handle.net/10810/51674
dc.description.abstractIntroduction: People aging with long-term physical disabilities (PAwLTPD), meaning individuals with onset of disability from birth through midlife, often require long-term support services (LTSS) to remain independence. The LTSS system is fragmented into aging and disability organizations with little communication between them. In addition, there are currently no evidence-based LTSS-type programs listed on the Administration for Community Living website that have been demonstrated to be effective for PAwLTPD. Because of these gaps, we have developed a community-based research network (CBRN), drawing on the practice-based research network model (PBRN), to bring together aging and disability organizations to address the lack of evidence-based programs for PAwLTPD. Materials and methods: Community-based organizations serving PAwLTPD across the state of Missouri were recruited to join the CBRN. A formative process evaluation of the network was conducted after a year to evaluate the effectiveness of the network. Results: Nine community-based organizations across the state of Missouri joined the CBRN. CBRN members include three centers for independent living (CILs), three area agencies on aging (AAAs), one CIL/AAA hybrid, one non-CIL disability organization, and one non-AAA aging organization. To date, we have held seven meetings, provided educational opportunities for CBRN members, and launched an inaugural research study within the CBRN. Formative evaluation data indicate that CBRN members feel that participation in the CBRN is beneficial. Conclusion: The PBRN model appears to be a feasible framework for use with community-based organizations to facilitate communication between agencies and to support research aimed at addressing the needs of PAwLTPD.es_ES
dc.description.sponsorshipFunding for this research was supported by a grant from the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR grant number 90DPCP0001) (SS, BM, MK, MD, MC, JD, SET). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). Research reported in this publication was also supported by the Washington University Institute of Clinical and Translational Sciences (grant UL1TR002345) (SS, BM) from the National Center for Advancing Translational Sciences (NCATS) of the National Institutes of Health (NIH).es_ES
dc.language.isoenges_ES
dc.publisherCambridge University Presses_ES
dc.rightsinfo:eu-repo/semantics/openAccesses_ES
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/es/*
dc.subjectcommunity partnershipses_ES
dc.subjectPBRNes_ES
dc.subjectaginges_ES
dc.subjectcommunity-basedes_ES
dc.subjectdisabilityes_ES
dc.titleDevelopment and Implementation of a Community-Based Research Networkes_ES
dc.typeinfo:eu-repo/semantics/articlees_ES
dc.rights.holderThis is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (CC BY 4.0)es_ES
dc.rights.holderAtribución 3.0 España*
dc.relation.publisherversionhttps://pubmed.ncbi.nlm.nih.gov/33948227/es_ES
dc.identifier.doi10.1017/cts.2020.45
dc.departamentoesArquitectura y Tecnología de Computadoreses_ES
dc.departamentoeuKonputagailuen Arkitektura eta Teknologiaes_ES


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This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (CC BY 4.0)
Except where otherwise noted, this item's license is described as This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (CC BY 4.0)