dc.contributor.author | Minor, Brittany C. | |
dc.contributor.author | Dashner, Jessica | |
dc.contributor.author | Espín Tello, Sandra Martina | |
dc.contributor.author | Bollinger, Rebecca | |
dc.contributor.author | Keglovits, Marian | |
dc.contributor.author | Stowe, James | |
dc.contributor.author | Campbell, Margaret | |
dc.contributor.author | Stark, Susan L. | |
dc.date.accessioned | 2021-05-31T08:37:05Z | |
dc.date.available | 2021-05-31T08:37:05Z | |
dc.date.issued | 2020-05-18 | |
dc.identifier.citation | Journal Of Clinical And Translational Science 4(6) : 508-514 (2020) | es_ES |
dc.identifier.issn | 2059-8661 | |
dc.identifier.uri | http://hdl.handle.net/10810/51674 | |
dc.description.abstract | Introduction: People aging with long-term physical disabilities (PAwLTPD), meaning individuals with onset of disability from birth through midlife, often require long-term support services (LTSS) to remain independence. The LTSS system is fragmented into aging and disability organizations with little communication between them. In addition, there are currently no evidence-based LTSS-type programs listed on the Administration for Community Living website that have been demonstrated to be effective for PAwLTPD. Because of these gaps, we have developed a community-based research network (CBRN), drawing on the practice-based research network model (PBRN), to bring together aging and disability organizations to address the lack of evidence-based programs for PAwLTPD.
Materials and methods: Community-based organizations serving PAwLTPD across the state of Missouri were recruited to join the CBRN. A formative process evaluation of the network was conducted after a year to evaluate the effectiveness of the network.
Results: Nine community-based organizations across the state of Missouri joined the CBRN. CBRN members include three centers for independent living (CILs), three area agencies on aging (AAAs), one CIL/AAA hybrid, one non-CIL disability organization, and one non-AAA aging organization. To date, we have held seven meetings, provided educational opportunities for CBRN members, and launched an inaugural research study within the CBRN. Formative evaluation data indicate that CBRN members feel that participation in the CBRN is beneficial.
Conclusion: The PBRN model appears to be a feasible framework for use with community-based organizations to facilitate communication between agencies and to support research aimed at addressing the needs of PAwLTPD. | es_ES |
dc.description.sponsorship | Funding for this research was supported by a grant from the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR grant number 90DPCP0001) (SS, BM, MK, MD, MC, JD, SET). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). Research reported in this publication was also supported by the Washington University Institute of Clinical and Translational Sciences (grant UL1TR002345) (SS, BM) from the National Center for Advancing Translational Sciences (NCATS) of the National Institutes of Health (NIH). | es_ES |
dc.language.iso | eng | es_ES |
dc.publisher | Cambridge University Press | es_ES |
dc.rights | info:eu-repo/semantics/openAccess | es_ES |
dc.rights.uri | http://creativecommons.org/licenses/by/3.0/es/ | * |
dc.subject | community partnerships | es_ES |
dc.subject | PBRN | es_ES |
dc.subject | aging | es_ES |
dc.subject | community-based | es_ES |
dc.subject | disability | es_ES |
dc.title | Development and Implementation of a Community-Based Research Network | es_ES |
dc.type | info:eu-repo/semantics/article | es_ES |
dc.rights.holder | This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (CC BY 4.0) | es_ES |
dc.rights.holder | Atribución 3.0 España | * |
dc.relation.publisherversion | https://pubmed.ncbi.nlm.nih.gov/33948227/ | es_ES |
dc.identifier.doi | 10.1017/cts.2020.45 | |
dc.departamentoes | Arquitectura y Tecnología de Computadores | es_ES |
dc.departamentoeu | Konputagailuen Arkitektura eta Teknologia | es_ES |